Repeat the process if necessary. A better option might be to try just a partial thyroidectomy or to take out just the half of the thyroid with the cancer. Not only can doctors NOT find a thyroid replacement that works for me due to side affects, Ive lost 70% of my hair and have to wear wig, Ive gained more weight than ever before in my life, Im constantly fatigued, in pain, moody, still have a very fast heart rate between 110-130, anxiety (like Im still hyperthyroid, but Im not.) I had RAI 20 plus years, I am 56 and my numbers are good. You are very welcome, I hope you find the information helpful! Your article is quite interesting. Results were. There isnt a specialist in the area of hormone balancing but you can use the resource above to help you find someone who can help you. This usually means that you are being overtreated and are being put into a state of hypothyroidism. Doctors tell cancer patients that the thyroid is the only tissue which takes up iodine, thus making this a safe form of cancer treatment that will not . I was normal weight and now frustrated to be 30 pounds overweight. Thyroid Hormone Resistance: What is it & How to Diagnose it. Family Medicine 59 years experience. The good news is that not every single person who gets RAI will necessarily gain weight. It is worth pointing out, however, that some other tissues can take up the radioactive iodine such as the beta cells in your pancreas (2) though it isnt clear how much damage exists (if any) in these other cells. I have my thyroid ablated about 20 so years ago. Is it healing and producing its own thyroxine now? The good news is that this radioactivity does fade over a short period of time (usually 5 to 7 days) but the bad news is that you need to stay under certain precautions during this time. No. depression, brain fog and other symptoms for years now. TSH. not the treatment of choice for them. Hyperthyroid Symptoms Checklist Do you Have an Overactive Thyroid? In regards to diets that can help, please see this article: https://www.restartmed.com/hypothyroidism-diet/. 3 weeks after I was taken off of PTU. It seems though that people who are already overweight BEFORE their procedure probably have the worst outcome and tend to gain the most weight compared to others. I eat all organic. My biggest fear is loosing my hair, my identity as a woman. To protect family pets, do not sleep with them for up to 21 days. Whatever touches your skin will pick up a small amount of radiation. If below 100 I will consider a snack of some nuts or piece of fresh fruit. This is possibly TMI but any guidance and suggestions would be greatly appreciated. You can expect to live a fairly normal life after radioactive iodine treatment but your life will probably not be exactly as it was before your procedure. I keep telling them that I dont feel so good flaking nails, dry skin, fatigue, weight-loss resistant with brain fog. I feel more like a ping pong ball being bounced back and forth! Nuclear medicine uses small amounts of radioactive material called radiotracers. Its impossible to predict how any one person will react to any given treatment or operation but the available research suggests that those who go into the procedure overweight are more likely to gain weight afterward. I would recommend touching base with your doctor to see if its related to your procedure or if its caused by something else. I was recently on Naturethroid for some years and it seemed to be a better choice for me, it was quite the battle to get the Drs to prescribe it. Stay at least six feet away from other people, including members of the public, family members, and co-workers, for three to 11 days. Since then I have suffered most every day with severe chemical sensitivity. Your TSH should always drop as you increase your thyroid dose and you should aim to get that TSH around the 1.0 range (which is considered normal in healthy adults). Now I cant stand the heat and I used to go to the beach all the time. Radioactive iodine may also affect a woman's ovaries, and some women may have irregular periods for up to a year after treatment. It is also called radio iodine. It can be an iodine-based material, barium-s ulfate, gadolinium, or saline and air mixture that can be swallowed or injected intravenously. Although caffeine-containing shampoos are popular they are not useful. Radioactive iodine (RAI) is a treatment that uses radiation to treat thyroid cancer. I am in the military, stationed in Fl. In most reports, the side effects include contrast dye allergy reactions, hyperthyroidism, and contrast-induced nephropathy accumulation of metformin. I was originally on Synthroid for a while and as I got older my body changes and T3 was required for optimal levels. That may not be the best decision, but I was becoming very depressed. Hi , I just had ROI treatment done a little over a week ago . Thanks. I'm Westin Childs D.O. https://www.restartmed.com/weight-loss-after-thyroid-removal/, Hello I had the rai treatment 33 years ago and I have never felt good since then , more recent they ultrasound my thyroid gland and the lady who did the ultrasound kinda freaked out saying to me where is your thyroid gland hat did they do it it, I was in the hospital with pancreatitisNo dr has told me there could be a reason for getting pancreatitis with hypothyroid and how can my blood tests say my thyroid is producing hormones and is low which means high . Recently also diagnosed with B12 deficiency and had exhibited most of the symptoms! It was also noted my B/P was sometimes Hypertensive, and my glucose readings were starting to climb. And in addition to going back to surgery for the left lobectomy, to expect to be on the Radioactive Iodine therapy. The majority of radioactive iodine is taken up by your remaining thyroid cells, since the thyroid normally uses iodine to make thyroid hormone. Prior to that, I always weighed in the 125-130 lb range (normal for my height). What do you recommend? Now, yesterday and today I had my Thyrogen injections, and tomorrow I go get my I 131 RAI pill and on home isolation for the following 7 days, and then my whole body scan. I hope this post is still active. Improving gut function can be done through diet and supplements. When we are deficient in this nutrient, the health of our hair is affected, leading to hair weakness or even total hair loss. I am concerned. The recommended timeframes are based on the size of the dosage you are receiving, so discuss the specifics with your healthcare provider prior to treatment. Men should sit down when urinating. I was experiencing heart palpations, diffuclty breathing while lying down, weight gain. This particular visit, my HA1C was up to 6 point something, and caused alarm as I am strict with my diet, admit though at that time I allowed myself a free day to eat as much and all the treats I wanted or craved. Iodine, an essential mineral, may affect hair health and hair growth through its effects on thyroid function. As so many of you, I too was very unaware of the many causes of having your thyroid removed can have on a person, or the underlying affects that can be caused by the I-131 RAI "therapeutic" radioactive iodine treatment. Learn which foods you should avoid if you have thyroid disease of any type. After that they again were having the same symptoms. Neck tenderness and swelling. But you probably at least know a little bit about RAI or you wouldnt be here. I am on my own taking more precautions, and going at this as a Haz Mat Tech, Yes, Im that too, as I am a volunteer fire fighter/EMT/ and wear many other hats as well as Haz Mat Tech and am certified in Decon operations. I would take a look at this article for more information on why people gain weight after RAI: https://www.restartmed.com/hyperthyroidism-weight-gain/, You can also find some tips for weight loss in this article (even though it is more specific to thyroidectomy): https://www.restartmed.com/weight-loss-thyroidectomy/, After the treatments, How fast do the weight begin to add in the pounds. Its not just that I cant stand the heat I get overheated so fast that I have to get in the AC or I feel like Im gonna pass out. Yes I took the radation iodine pill five days ago what can I take for itchy skin I got some cortisone will that help. I dont have another drs appointment till after the holidays. Um, Im a night shift nurse on a dementia unit in a nursing home, would you want me taking care of your loved one and have the brain fog, the jitteriness, the irritableness, and depression? Your best bet to AVOID weight gain after RAI is to go into your procedure with a normal weight and to maintain a healthy lifestyle both before and after. Its been a week after He is now smelling smoke, all the time. Before you or any family members have RAI treatment, it is strongly recommended that you read up on post-RAI guidelines and speak with your healthcare providers about how they should be applied to you. If this occurs, it is usually goes away as the body heals. fresh bread. I have noticed more and more symptoms within the past 5 years That lead me to believe i May have become hypothyroid. Too much of this hormone can lead to [] This is my own journey with battling cancer and by any means not meant to scare or offend anyone, but to get my story out. Difficulty breathing. As a result, it isnt uncommon for some patients to suffer from persistent symptoms of hypothyroidism (meaning that they dont have enough thyroid hormone). This can delay subsequent use of radioactive iodine (RAI) therapy because the iodine can compete for uptake. She said I am normal and not to worry. Thinning hair. Theres a higher risk that the cancer comes back but its also a way to preserve some thyroid function. You can find my recommendations on how to manage hair growth/hair loss with thyroid disease in this detailed guide: https://www.restartmed.com/thyroid-hair-loss/. All rights reserved. I was tested in 6 weeks and my thyroid numbers were still high so I was not tested again until Feb. 2019. I work hard at it. The next person to tell me how easy this cancer is, Im going to pull their toenails out threw their nostrils then tie them in a knot out their but hole. I'm Dr. Westin Childs. I used to be bubbly, and interactive with people. The amount The I-131 leaves your body through your urine primarily. (Pat). Iodine is a mineral that your thyroid uses to create thyroid hormone. My weight seems to be of no concern to him as long as my blood work looks okay. After reading all the comments I feel worried about the side effects.I saw in the report that they give me I-131 15mcl for hyperthyroidism. If you drive home after your appointment and there's another . I moved doctors in 2016 and my new GP immediately put my dosage down to 125 despite my protestations that I felt absolutely fine on 150. This content is strictly the opinion of Dr. Westin Childs and is for educational and information purposes only. Iodine (chemical symbol I) is a chemical element. June 10, 2022 . There are 37 known isotopes isotopesA form of an element that has the same number of protons but a different number of neutrons in the nucleus, giving it a different atomic mass. American Thyroid Association. Some people, however, may have further trouble after their treatment and suffer from weight gain, hypothyroid symptoms, and other issues. I had RAI about 39 years ago and every year Im tested for my TSH level which always seems to be in the normal range. Radioactive iodine can also show whether cancer has spread beyond the thyroid. Any help will be appreciated. They all tell me Thyroid Cancer is the easy cancer. 3 Anaphylaxis is a type of allergic reaction. Important to men is the fact that radioactive iodine can cause short-term reductions in sperm count for up to 2 years after your procedure (8). It does have effect : Radioactive dyes containing iodine of the iodide type can cause permanent thyroid damage and cancer. If we extrapolate out this data then it means that on average 30% of all people who undergo RAI can expect to gain some kind of weight. This isnt always true, but it is true for MOST people. Very small amounts of radioactive iodine may be absorbed by your salivary glands, and the lining of your stomach, which may cause side effects such as a sore throat or hoarseness. You usually have radioactive iodine as a capsule or a drink. Commentdocument.getElementById("comment").setAttribute( "id", "a7703e5f38024655a2d5bbdddbfa13ec" );document.getElementById("bc952adef4").setAttribute( "id", "comment" ); Hey There! Gadolinium-based Contrast Material. Many people undergo radioactive iodine treatment (RAI) without really understanding what is happening in their bodies. By looking at markers such as your TSH, free t3, and free t4 you can get an idea as to what is actually going on. You can opt-out at any time. After all, didnt the radioactive iodine work to reduce your overall thyroid hormone production? Sign up to receive 20% off your first order. Will you be able to lead a normal life? Is it 10 days? Hi, Dr. Westin ChildsI had Graves disease and had the radioactive iodine treatmentyour information was so good to read..weight gain is becoming an issue I just watch what I eat and exercise as much as I can I also have osteoporosis but managing well so far Thank you so much for your information. She is the author of "The Thyroid Diet Revolution. I am feeling all the emotions you described, depression is a big one, but all anyone is interested in is giving me another pill to make me happy again. I have battled my weight since I was a child, I had dropped from 400 pounds to 210 about six years prior, and was afraid all my efforts would be lost now. For this reason, its ideal to try and lose weight prior to the procedure as opposed to after. can i color my hair after radioactive iodine. Iodine and Hair Loss. And that training tells me I wont be ready to go back to work that afternoon. If possible, its always ideal to try and normalize your weight BEFORE the procedure. I have to take my Levothyroxine at midnight, as in the morning it causes me to have a jitteriness and brain fog, that is bothersome, and to have it in the time frame away from other meds and meals, midnight is the only option. I was exercising and my nutrition intake is organic most fruits, vegetables, meets grass fed etc. Warm shades on cool undertones can make you look washed out or dull. But it does increase your risk of weight gain if you have the procedure by about 2 to 3 times. My hair is the one and only thing about my looks that is considered beauty. What is your life going to be like after radioactive iodine treatment? Avoid sleeping in the same bed with a pregnant woman, infant, or child for a period of six to 23 days. Calculating the half life of radiation, it will be a couple months before I can be around nursing home residents and pregnant women, and each and every nursing home has several pregnant women on each unit and each shift. These are the questions that I want to focus on today and hopefully answer many of the current questions that you already have. Prior to discovering the bump, I had reversed my Diabetes and had consistent HA1C readings of 5 or lower. rice and dries pasta. Now they are suggesting a second treatment at a higher dose. I know they are going to try to drop me further. A swollen or tender neck and feeling flushed. I have since been on a roller coaster ride with the levels fluctuating up and down and not sure why. My Dr. stated that my MTHFH enzyme is blocked indicating a genitic issue. I dont feel like I have gone back hyper after being off my meds for 4 weeks. Im at the point now where I told all the doctors for my medical team, and team being the operative word here, that Im not going to offer anymore feelings of what Im going threw, or feeling, Im not going to ask anything, nothing, you all have my lab reports and other diagnostics, y all can figure it out for yourselves!
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